How time flies when kids grow up.

I remember when we’d be able to have her lie on the couch and not worry about her falling off because she couldn’t roll yet. Now, we lie in bed trying not to wake up as she rolls back and forth over my wife and I. Two year olds are active!!!

She runs, jumps, loves to slide, can lump words together into smal sentences, and loves to come back to my office at night, where “lap” is soon followed by “cracker pwease.” It’s amazing how polite she is. I guess my efforts in that regard are paying off. She doesn’t always say the P words (how many kids do?,) but please, thank you, welcome, and bless you are much more common than I expected at this age.

Now, the somber yet hopeful news. Last week we had to take her into Children’s Hospital for a yearly checkup of her Neutropenia. They did another hip biopsy, which requires general anesthesia. It’s very sad and disheartening to watch her drift into sleep and then to just sit and wait for her to come back out. We found out that my combing her hair is an effective way to piss her off so that she comes out of her sleep state. I guess I don’t do it that well, huh??

The results are back, and she is no worse off than before. Negative on all the tests they ran, and they even ran one that went to the chromosomal level (it checks for the possibility of onset MDS/AML)

She’s been back on her shots for a while, and with these results, it looks like she’ll be on them for a while longer. So even though she hasn’t gotten worse, she hasn’t gotten better yet either. Kind of a good news/bad news scenario.

As a treat for both her and my mom (nana,) we got a family membership to the Seattle Children’s Museum. This place is so much fun (and only 4 blocks walk away to boot!!) I took them both last week and Kelsey had a great time. So much to explore and learn!

Hope all is well with you and yours.

EDIT: So, it appears I’ve jinxed us once again. Whereas she was not admitted, we did have to take her to Children’s this evening for a fever (Nuetropenics have to go in if they spike over 101.5. No Tylenol, no sleeping it off, just a trip straight to the ER. She had an ANC (absolute neutophil count) of 6200, which means we could go home. The minimum is 1200, or she gets admitted and dosed with antibiotics in case the fever is due to a bacterial infection, that with an ANC too low she could not fight on her own.) At least we got to see Balto while we waited in our isolation room (she can’t even wait in the ER waiting room until her room is ready, we have to stay in the car, go straight to triage, and then striaght into isolation.)